i am fully enjoying orientation, but i’m getting tired of all of the socialization activities and “ice breakers” and just all of that stuff. i want to get into my routine and explore and discover this great city that i now call home. i can’t wait until classes start and the weather isn’t so unbearable.
also, i can’t wait until i can stop giving myself injections. today i found out that my INR level was 2.5, which is perfect. but i have to go back to the clinic tomorrow for more blood work since they want that level for at least two blood draws. other than that, i’ve been feeling pretty great at school. i’m so glad that i’m even here; it’s crazy that a week and a half ago i was in the hospital and i wasn’t able to see at all. now i’m at college and my vision is so close to being back to normal!
i can’t believe that tomorrow is the last day before i leave for college! everyone else has been leaving and talking about moving and everything, but for some reason it didn’t hit me until yesterday. with all of my health issues that i’ve been having this summer, i’m nervous to go out on my own. i feel fine and everything, but there’s just this constant burden that i’m not my normal healthy self. i wish i didn’t have to worry about giving myself injections, or ordering a medical alert bracelet, or having enough medicine and the proper clotting levels in my blood, or going to get blood drawn every week, or having mri’s. i’m going to have so much going on, and this is definitely going to stress me out. i like to consider myself well adjusted to my new health status, but i don’t know how being in a new environment is going to change that. but i know that i will have support both physically at school and at home, so that’s amazing. seriously, simmons has been so understanding throughout everything.
and then there’s the fun stuff….
IM MOVING IN ON SUNDAY! today, i did most of my last minute shopping that i’ve been putting off for so long. i’m almost completely done packing, minus some cosmetic type items and all of my computer/ipod/phone chargers and paraphernalia. i ordered my books (which cost so much! but i’m glad i got it over with). then i went to my sisters soccer game to see her play for probably the only time this year :(. tomorrow is going to feel so weird. in the morning i’m going to be tying up loose ends at home like doing laundry and cleaning. then i need to hit the bank and target. after that, i’m going to the park to hang out with some friends and just chill. then my friend’s coming over to say goodbye/talk about how excited we are for college. then i’m going to try to go to sleep, but really just lay in bed thinking about everything and being so excited!
i’ll admit, i wasn’t sure if i was going to be able to start college this semester a few weeks ago. i was laying in bed, unable to even go past a 45 degree angle without getting a pounding headache. i was about 20 pounds below my normal weight after not eating for about a week and a half and i was on oxycodone, steroids, nexium, hydrocodone, and who knows what else, recovering from brain surgery and a splenectomy. at that time, i couldn’t even imagine living on my own in boston in a month’s time.
and then i got a lot better. i was able to see again without double vision and my headaches were gone. i was also feeling a lot better after having my spleen taken out. i was (and still am and will be for about a year or two) taking penicillin to help my newly weakened immune system. i went to my doctor for a physical and was feeling almost normal. then the next day, my vision wasn’t quite right. i was driving to the mall with my mom when the lines on the highway were merging together and crossing. i knew that something was wrong, again. so we went to the eye doctor to check things out and she said that my eyes were fine, there was some weird pressure inside my skull.
we were driving home from concord and stopped at my grampa’s house for a visit. that’s when i got the call that i was going to need another surgery; a shunt to permanently drain the fluid from the cyst in my brain. i cried. it’s been so frustrating, even though i try to laugh about my double vision and the crosseyed look i’m currently sporting, i’m getting so tired of not being healthy. so we drove back to hanover, new hampshire to be admitted in the hospital again. i was going to have surgery within the next two days.
THEN, on the day of my surgery, after having a quick brain mri and an mrv (where they look at the veins in your brain), my neurologist walks in and says that i don’t need another surgery. they found a blockage (clot) in on of the veins in my brain that was not allowing fluid to exit my skull, causing pressure to be put on my optic nerve, causing double vision. BAM. i was so relived, even though this is still a pretty serious thing.
so, we did more blood work, i met with about four new doctors, and then i went home with more new medicines. as of now, i have to have injections of lovenox twice a day (done by my mother, or myself) and i’m on coumadin. i’m also weening off of steroids and other medicines that were controlling the pressure in my head.
so for the next few months, i’ll have to go to get my blood checked every two weeks at a clinic so they can monitor how my blood is clotting while i’m on the coumadin. apparently a lot of older people have to do this, too. i’ll also have to keep taking the injections of lovenox for a while, until the coumadin really kicks in (hopefully won’t be awkward at school).
so now i’m just getting some last minute school things together before i leave for simmons on sunday! i’m so excited. also, they’ve been so understanding about my whole experience and i’m so happy that i decided to go to a smaller school. it’s going to be great (:
for dinner at reba’s house (: i’m so excited to see everyone again, since i haven’t seen most of these people since graduation. i can’t stay for too long because i have to come home so my mom can give me a shot in my stomach around 9 or 10, but i’m still excited to go out. i came home from the hospital again today and i’m feeling great! just waiting for my double vision to go away :/
buttttttt, i have NO desire to do my hair. my bangs need a trim desperately.